About four weeks old Lizzie started "waking up." She was starting to stay awake longer and very alert. She also started to have seizure like episodes. She would jerk in quick movements, her eyes would roll back in her head, her mouth and chin would make quiver movements. At first I just thought it was baby jerks and it was normal. When people would ask "What is she doing?" I would reply with "I'm not sure just newborn baby things." I thought that is what it was. I would sometimes think that they look like seizures but quickly dismiss the thought because it would not last long. When she was five weeks we went to a wedding for Katie Crooks.
Katelyn Sellers and Lizzie at the wedding! Look at that baby she looks perfect! Well at the wedding many people were holding her and the jerking started. All the "mommy's" told me this was not normal and we needed to take her to the ER. We went to the ER but since it was the weekend and she had stopped having episodes there was not much they could do. We went home and saw the pediatrician on Monday! I love our Pediatrician because he is pretty laid back and doesn't worry about much. I thought he would tell us we were over reacting and she was fine. Well I was totally WRONG!! He was very worried about this and immediately sent us to have an EEG on her brain. The plan was to have an EEG and if the results were normal and she stopped having the seizures. We would rule it as a fluke and go on with life. If Lizzie keeps having them we will need to see a neurologist.
It took two VERY LONG weeks to get her results back! With lots and lots of prayer the results came back normal! AND she did not have any episodes during that time! On the third week she had another seizure episode. Really! It has been THREE weeks! We went to her two month checkup and I told the doctor. He immediately sent a referral to the neurologist. We are now having to wait for an appointment and that takes along time to get. I HATE waiting! I do feel better waiting for the appointment because the results of the EEG normal. We are logging when she has them and how long it lasts and trying our best to record one. Mom tried to record the one on Wednesday but she forgot to hit the record button. haha You may ask what might cause the seizures and from what we think they are infant seizures and they are caused from low birth weight, preemies, and cord wrapped around the neck at birth. Lizzie had all the above. They will most likely go away by the time she is one year. There is not history of epilepsy seizures in my family or Craig's (that we know of). As we wait on these next appointments please be in prayer for my precious little family!
Thank you we love you all!
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